2011 Research and News
XMRV updates and information can be found here as well as below
September 2011
International Consensus Criteria Published for Myalgic Encephalomyelitis - An independent consensus panel of international experts has published in the Journal for Internal Medicine a proposed new criteria for myalgic encephalomyelitis (ME).
Chronic Fatigue Initiative -Accelerating the medical community's knowledge of Chronic Fatigue Syndrome through research grants and collaboration.
Applying Venture Philanthropy to Chronic Fatigue Syndrome
- By Amy Dockser Marcus
Kathleen Light's Group Secures Million-Dollar NIH Award
- Kim McCleary
Chronic Fatigue Syndrome Study Deals a Blow to a Viral Theory - David Tuller - NY Times - Also XMRV in Science: Take Three - Kim McCleary
Reduced insular gamma-aminobutyric acid [GABA] in fibromyalgia - Source: Arthritis & Rheumatism, Sep 13, 2011 - ProHealth
Sensory Overload Part of Your Fibro? - Fibromyalgia Network
NCHS to Consider Reclassifying CFS as Neurological Disease Sep 14 - Coalition 4 ME?CFS - Prohealth
Annette Whittemore (WPI) on Nevada newsmakers - video
Cerebral Blood Flow Alterations in Pain-Processing Regions of Patients with Fibromyalgia - Prohealth
What might cuase ME? - Giles Meehan - video (RMCFA Youtube channel)
Vagus Nerve Stimulation for Fibromyalgia Treatment - By Adrienne Dellwo
The Center for Translational Medicine at the Whittemore Peterson Institute ("WPI") is proud to welcome Dr. Robert S. Fredericks as our first medical practitioner. - Prohealth
Genetic fibromyalgia subgroup with higher BMI & inflammation identified - UT San Antonio - Prohealth
Harvard EEG tests distinguish CFS from major depression patients; temporal lobe implicated - Prohealth
June 2011
More Doubt Cast on Study of Chronic Fatigue - Amy Dockser Marcus - Wall Street Journal
Two Studies Examine Syndrome of Fatigue/XMRV - David Tuller - New York Times
Florida International University Joins PANDORA as Academic Partner for Future NEI Center
The NOW Foundation will present its 2nd annual Victoria J. Mastrobuono Women's Health Award to Nancy Klimas, M.D.
CFIDS Association of America launches research website and names new Scientific Advisory Board
Further Evidence of Immune Dysfunction in CFS Syndrome - Prohealth
Serotonin & Blood Flow in Fibromyalgia & Chronic Fatigue Syndrome - Adrienne Dellwo - About.com
CFS, Misnamed, Misunderstood, Misdiagosed - Llewellyn King - White House Chronicles
Study Finds Skin Itself May Be Ignition Point in Neuropathic Pain - ProHealth
IACFS/ME Professional Conference Announced - Translating Evidence into Practice - September 22-25, 2011 · Ottawa, Ontario, Canada - several fibromyalgia workshops are included
Demonstrations in Washington DC and San Francisco - Health and Human Services -San Francisco Chronicle story
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"The November Factor": Dr. Bell on ME/CFS & the Flu that Isn't Flu - ProHealth.com by Dr. David S Bell, MD
To the heroes - Chronic Fatigue Syndrome: A Salute To 10 Kinds of Heroes - EmpowHer.com
Fibromyalgia: Diagnosing Fibromyalgia: Common Misdiagnoses - WebMD
CFS in teens not common but very serious & under-diagnosed by GPs - ProHealth
Facing Surgery With Fibromyalgia & Chronic Fatigue Syndrome - Adrienne Dellwo - About.com
Assessment of a 44 gene classifier for the evaluation of chronic fatigue syndrome from peripheral blood mononuclear cell gene expression - ProHealth
Video - The White House Chronicles - CFS - an orphan epidemicGuests: Amy Marcus, The WSJ; Frances Stead Sellers, The W. Post; Deborah Waroff; and Dr. Leonard Jason
Video - What is it like having ME/CFS? - GetWellFromME
March 2011
Proteins found in spinal fluid may lead to biomarker - stories below:
A Step Closer to Tests for Chronic Fatigue Syndrome and Lyme Disease - Amy Dockster Marcus
New Center of Excellence:
Stanford University and Dr. Montoya has launched CFS center of excellence initiative - website
Wall Street Journal Articles:
Unlocking Chronic Fatigue Syndrome - Amy Dockster Marcus - This article was featured in the print edition WSJ Personal Journal section
The Puzzle of Chronic Fatigue - Amy Dockster Marcus
Rural NY Town Becomes Chronic Fatigue Laboratory - Jason Bellini - Must see video complimenting "The puzzle" article above
Amid War on a Mystery Disease, Patients Clash With Scientists - Amy Dockster Marcus - This article was featured on the front page of the WSJ.
An Illness That's Hard To Live With-Or Define - Dr. Lenny Jason
XMRV and the Blood Supply: More Study Needed - Amy Dockster Marcus
XMRV: Study Shows Virus Can Cause 'Persistent Infection' in Monkeys - Amy Dockster Marcus
New York Times Article:
Defining an Illness Is Fodder for Debate - David Tuller - featured in the NY Times printed edition health section
Other:
National Fibromyalgia & Chronic Pain Association (NFMCPA) launches
OFFER launches Youtube channel for educational videos - It will feature their monthly CFS & FM educational meeting videos
January 2011
RMCFA and the ME/CFS World Patient Alliance join forces
Chronic Fatigue Syndrome Patients Run First-ever Ad in The Washington Post

RMCFA has joined the ME/CFS World Patient Alliance, Pandora, Vermont CFIDS Association, Rescind and the Wisconsin ME/CFS Association in an awareness campaign. The 1/2 page ad ran in the Washington Post Monday December 6th. You can see the ad here.. Read more about the campaign here.
The ad is out! Read the PRnewswire press release
RMCFA Press release
Campaign message delivered to NY Times square - "ME/CFS patients are invisible no more"
Videos and webinars:
FDA advisory committee recommending that people with ME/CFS be barred from donating blood
The American Red Cross has made a policy change for CFS Donors
To protect the blood supply ARC will defer CFS patients and distribute handout (left)
Read the statement here
Click to see full size poster
December 2010
Webinars:
November 2010
Archive News
2008 News
August
(Thanks to Cort Johnson for providing this content and these links.)
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Dr. Ken Friedman on the Federal Response to ME/CFS - click here
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Dr. Ken Friedman on the ME/CFS Research: Roadblocks and Opportunities - click here
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Mad About FM/CFS: RESCIND Founder and Awareness Day Founder Tom Hennessey - click here
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The Immune System, Treatment and Hope for the Future: Focus on Dr. Nancy Klimas - click here
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The Symposium on Viruses in Chronic Fatigue Syndrome (ME/CFS) - a two part overview - click here
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A Patient Returns: An Interview with author Martha Kilcoyne - click here
May/June
View/Listen - TV and Radio CFS Public Service Announcements (PSA's)
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Science of CFS: Past, Present and Future- webinar w/S. Vernon - click here
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Muscle Pain in Chronic Fatigue Syndrome (ME/CFS) - click here
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FDA Approves Cymbalta (Duloxetine) for Fibromyalgia - click here
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Research Roundup - 3 fascinating studies - click here
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CFS being caused by a rare brain infection? - click here
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Study measured metabolic dysfunction of hippocampus in FM - click here
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CFS/Looking for a Breakthrough - CFIDS chronicle/winter 2008 - click here
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Wichita Study of Cortisol and Interleukin 6 - click here
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Conference to Examine Viral Infections in CFS - click here
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Newly-recognized syndrome may exist in ME/CFS subset - click here
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Low magnesium & zinc associated w/FM pain, fatigue levels - click here
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Study suggests ME/CFS subsets with different sleep patterns - click here
February
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Q&A Session with Nancy G. Klimas, MD - click here
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Q&A Session with Charles Lapp, ME - Authority on ME/CFS/FM - click here
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Name Change Website Launched - click here
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Educational DVD on Fibromyalgia - Watch It Online- click here
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Cortisol Concentrations in a CFS Population - click here
2007 News
November 2007
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Dr. Suzanne Vernon named scientific director at the CFIDS Association of America - click here
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CFS name change moves ahead - click here
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CFS Heart Rate Dysfunction Persists in Sleep - click here
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Can Staph vaccine treatment improve CFS & FM symptoms?- click here
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Antidepressant trials review suggests duloxetine safe & effective for FM - click here
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Update on Antiviral Medication and Comprehensive CFIDS Management - click here
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Charles W. Lapp, MD - CFS Pioneer, Researcher, and Clinician - click here
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Bright Light Treatment of Winter Depression - click here
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Fibromyalgia: Looking Back Over the Last Ten Years - click here
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The World FM Community - click here
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Treatment blocks pain without disrupting other functions - click here
October 2007
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New Study Links CFS to Enterovirus Infection - click here
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Dr. Clauw's Golden Rules for CFS and Fibromyalgia Patients - click here
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Q&A Session with ME/CFS and Fibromyalgia Dr. Lucinda Bateman, MD - click here
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NIH Announces RFA for Chronic Pain Syndromes, Including CFS - click here
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Controlling Pain - Benjamin Natelson, MD - click here
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CFS Researcher Gets Grant from NIH to Study Retrovirus - click here
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Dr. David Bell publishes new book - Cellular Hypoxia & Neuro-Immune Fatigue - click here
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CFS HHV-6-Possible Cure? Physicians Encouraged by Valcyte - click here
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CFS photo exhibit will be in Denver - October 11- 14 at Park Meadows Mall
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Dr. David Bell's -Cellular Hypoxia in Neuro-Immune Fatigue - click here
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Live Q&A session with Dr. Bateman - Friday. September 7th - click here
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CFS and the Exercise Conundrum- Dr. Bateman - click here
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Two New Studies Invite Fibromyalgia Patients' Participation - click here
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Chronic Fatigue Syndrome' Name Challenged- - click here
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FMS New Paradigm: Neural Sensitization and Its Implications for Treatment - click here
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Management of patients with Fibromyalgia using biofeedback: A randomized control trial - click here
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CDC scientists publish CFS Georgia population study - click here
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FDA approves Lyrica (pregabalin) for Fibromyalgia - click here
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The New York Times "Chronic Fatigue No Longer 'Yuppie Flu' "-click here
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Two reports: "Genes Linked to Postinfective CFS" & "The infection Connection"- click here - click here
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Causes of death among patients with CFS - click here
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Blood supply dysregulation cause of Fibromyalgia pain? - click here
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Dr. Pall - New Explanation for CFS and Fibromyalgia - click here
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Hypoglycemia a problem for CFS and Fibromyalgia patients - click here
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"The Changing Science of Pain" (Newsweek article) - click here
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Pediatric CFS Case Definition Published- click here
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CFS Advisory Committee Meeting Report - click here
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DePaul study - Functioning with multiple diagnosis" click here
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Psychological distress and recurrence of upper respiratory tract infections in CFS" click here
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Fibromyalgia Myth Busting " click here
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Cal State Fulerton opens Fibromyalgia Research and Education Center
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2007 IACFS conference overview - click here
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Cognitive Behavioral Therapy - click here
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Chronic Fatigue Syndrome in Young People: Myths & Special Considerations - click here
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Neuroimaging Tracks Mental Fatigue in CFS " click here
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American College of Physicians article - "Putting chronic fatigue syndrome's myths to bed" click here
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Research!America distributes flier about CFS to Capitol Hill, health agency leaders, public health officials, research academics, governors, state legislators and media professionals. " click here
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Cellular and Genetic Studies Under Way" click here
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Recent Drug Trials Offer Hope- click here Whittemore Peterson Institute for Neuroimmune Research website - click here Dr. Bell - Lydonville News - November 2006 e-news Dr Cheney lecture - CFS and heart dysfunction - download
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Dale Guyer, MD, Discusses the Integrative and Molecular Treatment of Chronic Fatigue Syndrome and Fibromyalgia -
click here
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Jury Awards FM/CFS Patient $15.4 Million in Disability Suit - - click here
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Sleep Dysfunction in CFS - click here
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Preliminary Awareness Campaign Statistics - click here
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Kent Holtorf, MD, on Treating Chronic Fatigue Syndrome & Fibromyalgia - An Update - click here
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View IACFS Conference Summary By Anthony Komaroff, M.D. Professor of Medicine, Harvard Medical School - - click here
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IACFS lecture "Making the Most of Your Doctors' Appointments" by Lucinda Batemen - click here
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Laymen's Guide/Recap to the 8th IACFS Professional Conference - Four part series by Cort Johnson - click here
Pregabalin (Lyrica) Offers Pain Relief Option For Fibromyalgia in Long Term Study- click here
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CFS name change - What Is An Encephalopathy? - click here
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Exercise Testing Uncovers Abnormalities in CFS -click here
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The Disability Paradox, and How a Fibromyalgia Specialist Can Help Patients Preserve Gainful Employment - Dr. Mark J. Pellegrino, MD - click here
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Sleep Is Vital For Good Health - In CFS and FM by Dr. Sarah Myhill, MD - click here
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Whole-Genome ME/CFS Study Resumes: Recruits Subjects - click here
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Politics and CFS Research- click here
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Valganciclovir (Valcyte) shows promise in some CFS patients
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National Fibromyalgia Association publishes brain study of Fibromyalgia patients
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Overwhelming Evidence Legitimizes Fibromyalgia Pain
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Journal of the American Medical Association (JAMA) recognizes CFS - click here
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American Medical Association (AMA) validates CFS to Physicians - click here
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NIH Announces 7 Grants for CFS Research Valganciclovir (Valcyte) shows promise in some CFS patients
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National Fibromyalgia Association publishes brain study of Fibromyalgia patients
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Overwhelming Evidence Legitimizes Fibromyalgia Pain
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Journal of the American Medical Association (JAMA) recognizes CFS - click here
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American Medical Association (AMA) validates CFS to Physicians
Studies Explore Childhood Fatigue and CFS- -
2006 News
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CFS Gene Study Targets Serotonin Function - click here
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FDA approvals of FM drugs increasing awareness - click here
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Updated estimate of U.S. FM prevalence released - click here
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DHHS CFS Advisory Committee report- click here
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The Gene Teams - CFS Computational Challenge - click here
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CFIDS Assoc names Suzanne Vernon SD - click here
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CFS Heart Rate Dysfunction Persists in Sleep - click here
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CFS News from Capitol Hill - click here
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Q&A Session with R. Paul St. Amand, MD - click here
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Mayo first test diagnosing Chronic Myofascial Pain - click here
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Significant improvement with growth hormone in FM - click here
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UK genomic profilers identify 7 ME/CFS subsets - click here
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Brain scans sensory grey matter increase in FM patients - click here
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Forest Labs/Cypress Submitt NDA For Milnacipran For Treatment Of FM - click here
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RMCFA featured in Prohealth article - click here
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Taking Stock: ME/CFS Advocacy Making Headway - click here
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Fibromyalgia: A Disorder of the Brain? - click here
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More evidence that FM turns up sensory signal 'volume' - click here
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Science and Legal News on Postexertional Malaise - click here
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Study Shows Low Cortisol in Women with CFS - click here
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Could B-12 Deficiency Be Causing Symptoms? - click here
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Multiple Chemical Sensitivity (MCS) - What Is It? - click here
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Missouri Bill Targets Help for Fibromyalgia Patients - click here
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May 12, 2008 - FM awareness day - click here
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Hypothyroidism Testing Controversy & Therapies - click here
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IBS Linked to Abnormal Brain Activity - click here
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Chronic Pain Harms the Brain - click here
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ME/CFS as a Mitochondrial Disease -Dr. David S. Bell, MD, FAAP - click here
& NEW April 2008 Lyndonville newsletter - click here
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Etiology, Exercise and CFS By Suzanne Vernon, Phd - click here
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The Research/Advocacy Connection - click here
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Cardiac tests differ in CFS & Fibromyalgia - click here
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Your Immune System & How it Works/ William Collinge, PhD - click here
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CFS Advisory Committee to Meet May 5-6 - click here
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Recently Published CFS Studies - click here
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Q&A with Scientific Director Suzanne Vernon - CFIDS Association - click here
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