September 15, 2007: Chad Cotter, D.C., Potential Value of Chiropractic Treatment
August 18, 2007: Bryan Mandress, Dipl. A.C., C.H., Clinical Hypnotherapist, Acupuncturist, and Herbalist, Potential Value of Hypnosis
June 16, 2007: Annual Picnic, Progress Park in Littleton
May 19, 2007: Group Discussion, CFS or FM Treatment, and rescheduled DVD from April
April 21, 2007: DVD Meeting: Lee Smith, M.D., pain specialist, Fibromyalgia Update
March 24, 2007: Karen Falbo, C.N., Dietary Principles to Reduce Pain, Inflammation, and Fatigue” (held at Vitamin Cottage in Lakewood)
February 17, 2007: Carrie Louise Daenell, N.D., Total Digestive Repair – Holistic approach to CFS and Fibromyalgia
January 20, 2007: John O’Hearne, M.D., Fatigue and Fibromyalgia
Friday, December 15, 2006: Lunch at Old Country Buffet in Englewood.
November 18, 2006: Social Security and Long Term Disability Related Legal Issues, with James Noel, Esq, and Mike Krieger, Esq.
October 21, 2006, DVD Meeting, featuring parts 1 and 2: Select Research Advances and Implications for Fibromyalgia and Chronic Fatigue Syndrome, Dr. Lucinda Bateman
September 16, 2006: DVD Meeting, featuring two DVDs: CFS Research Advances, Dr. Nancy Klimas, and Managing Fatigue, Dr. Lucinda Bateman
August 26, 2006: Annual Picnic, held at City Park in Denver
June 17, 2006: Discussion Meeting “Then April 2006 CFS Research News” (eleven April 2006 Pharmocogenomics Articles)
April, 2006: No meeting (due to Passover/Easter weekend).
March 18, 2006: Lecture Meeting: The New Medicare Prescription Drug Plans (PDPs) with Eileen Doherty, Executive Director of Senior Answers and Services and the Colorado Gerontological Society. For more information, visit www.senioranswers.org where Eileen has a related article (as of the printing of this postcard). Whether qualified by disability or retirement, now or in the near future, the new PDPs raise many questions for people with Medicare A and/or B, or prior Medicaid drug coverage. Feel free to invite friends or relatives who need more understanding of the new PDPs (which have a May 15 enrollment deadline, with penalties for later enrollment).
February 18, 2006: Lecture Meeting: Psychosocial Aspects of Chronic Illness: Grieving Losses; Assessing Resources; Moving Forward with Jennifer Moyer Darr, LCSW at National Jewish Medical and Research Center. Jennifer focuses on psychological factors related to illness, and provides counseling and cognitive behavioral therapy. Please bring something firm to write on. For more information, visit www.njc.org, enter "Darr" in the upper right search box, select Go, then click on Jennifer's name.
January, 2006 — no meeting (due to lack of available space at National Jewish Center).
November 19, 2005: Discussion/Support Meeting. Topic for half the time: Social/Occupational Coping Techniques
October 15, 2005 — Lecture Meeting featuring Tracey Lister, P.A.–C., Founder and Medical Director of Focus on Fibromyalgia, Inc., a Denver-area non-profit group which provides medical services, will speak about her organization's approach helping Fibromyalgia patients.
Having Fibromyalgia herself, Tracy has a special interest providing such help. She started this non-profit firm to provide affordable healthcare for patients with Fibromyalgia and its associated syndromes, CFIDS and Myofacial Pain Syndrome.
See www.focusonfibromyalgia.com for more information (but realize the firm has grown and the website may not have caught up to recent changes, including having on staff Dr. Bruce McFarland, D.O., and massage and acupuncture providers).
September 17, 2005 - Discussion/Support Meeting, designed to provide opportunity for group members to discuss issues and learn from each other in a supportive environment. Topic for half the time: Keeping a Positive Attitude In Spite Of Physical Limitations
August, 2005: no meeting (due to lack of alternate leader).
June 18, 2005: Small Support Group Meeting, in room J103 of the new Molly Blank Conference Center at NJMRC (just south of Heitler Hall), designed to provide opportunity for group members to discuss issues and learn from each other in a supportive environment.
May 21, 2005: no meeting (TBD lecture never materialized).
April 16, 2005: Small Support Group Meeting, in room J103 of the new Molly Blank Conference Center at NJMRC (just south of Heitler Hall), designed to provide opportunity for group members to discuss issues and learn from each other in a supportive environment.
March 19, 2005: Lecture Meeting, in Heitler Hall: Chief Medical Officer Kent Holtorf, MD, of the Fibromyalgia and Fatigue Centers, Inc., from California, accompanied by Denver FFC's Arlyn LaBair, MD, will discuss their approach to treatment of Fibromyalgia and CFS. Dr. Holtorf and CEO Mr. Bob Baurys each have experienced one or the other of these illnesses. They are setting up centers nationwide with the goal of providing quality medical care and positive outcomes for FM/CFIDS patients. The Denver center was among the first four centers started. For more information visit
www.fibroandfatigue.com on the web.
February 19, 2005: Small Support Group Meeting, in room J103 of the new Molly Blank Conference Center at NJMRC (just south of Heitler Hall), designed to provide opportunity for group members to discuss issues and learn from each other in a supportive environment.
January 15, 2005: Lecture Meeting, in Heitler Hall: Mind Body Interactions in Origins and Symptoms of Chronic Fatigue / Fibromyalgia with Veronique Mead, MD, MA. Dr. Mead is a Somatic Psychotherapist from Boulder who draws from her clinical experience, research, and personal experience with chronic fatigue. Somatic psychotherapy helps people with chronic illness understand, identify and work with mind-body interactions that may unwittingly help maintain or propagate some illness symptoms. For more information, visit www.veroniquemead.com on the internet.
November 20, 2004: Small Support Group Meeting, in room J103 of the new Molly Blank Conference Center (just south of Heitler Hall), designed to provide opportunity for group members to learn from each other in a supportive environment. Refreshments will be provided.
NJMRC has not had much experience with groups such as ours using the Molly Blank Conference centers on weekends. For security reasons, the outside door will remain locked. Someone from our group will let attendees into the building. If you come late, you may need to knock loud enough to be heard a bit down the hall!
October 16, 2004: Lecture Meeting in Heitler Hall: James Noel, an Attorney who specializes in Disability cases (and last spoke to us in May 2001), will update us about Social Security Disability and Long Term Disability issues.
September 18, 2004: Lecture Meeting in Heitler Hall: Alicia Maltzman, the Nurse Practitioner at the Beacon Clinic in Boulder (who handles patients in collaboration with Dr. Nelson Gantz) will talk about her approach toward treating CFS and Fibromyalgia.
August 21, 2004: Annual Picnic (reinstated after missing two years), outside covered patio behind Heitler Hall.
June, 2004: no meeting (due to lack of alternate leader).
May 15, 2004: Small Support Group Meeting (similar to January 17).
April, 2004: no meeting (due to NJMRC booked up with their annual TB conference)
March 20, 2004: Small Support Group Meeting in L106 (the "old board room," next to the cafeteria; (similar to January 17)
February 21, 2004: Lecture Meeting in Heitler Hall at National Jewish Medical and Research Center (1400 Jackson Street) featuring nationally known CFS expert Dr. Nelson Gantz, currently Chief of Infectious Disease at Boulder Community Hospital. Dr. Gantz is a co-author of both the 1988 and 1994 CDC Definitions of CFS, and a voting member of the Department of Health and Human Services (DHHS) CFS Advisory committee.
January 17, 2004: Small Support Group Meeting in the "old board room" (next to the cafeteria) designed to provide a warm and caring environment where people may offer support, share feelings and methods of coping, and provide insights into living with chronic illness. Refreshments will not be furnished at this meetings. However, you may bring your own drink and/or snack.
November 15, 2003: Remediation and Enhancement of Visual Performance featuring Edvin Manniko, O.D., of Accelerated Performance in Denver, speaking about diagnosis and treatment of visual input problems. Though individually corrected, the failure of both eyes to work together can cause physical problems such as headache and fatigue which are not obviously related to vision. For more information, see: (1) Visual Dysfunction in Chronic Fatigue Syndrome in the Summer 2001 CFS Research Review, V.2, Issue 3, pp. 4-6, 9; and/or (2) Visual Dysfunction in CFIDS in the Fall 2001 CFIDS Chronicle, V. 14, Issue 4, pp. 7-9.
October 18, 2003 – Small Support Group Meeting in the old Board Room (next to the cafeteria) at NJMRC.
September 20, 2003: Sleep Better—Feel Better featuring Richard Shane, Ph.D., of the Center for Personal Development in Boulder, speaking about Sleep Naturally, his non-medication approach to sleeping more deeply. Dr. Shane's method may help you learn techniques to trigger better sleep. (See www.drshane.com for more information.)
August 16, 2003 – Small Support Group Meeting in the old Board Room (next to the cafeteria) at NJMRC. These will be a new type of meeting designed to provide a warm and caring environment where people may offer support, share feelings and methods of coping, and provide insights into living with chronic illness. Refreshments will not be furnished at these meetings. However, you may bring your own drink and/or snack.
Thanks to Stacey T. and Tanja B. who will be facilitating these initial two centralized meetings and assessing interest in continuing centralized meetings and/or forming Small Support Groups in various parts of the Denver metro area.
June 21, 2003 – Social Gathering at Bear Valley Library meeting room.
May 17, 2003 – Lecture Meeting at Heitler Hall of National Jewish Medical and Research Center (1400 Jackson Street): Naturopath and Acupuncturist Erik Flatland, N.D., L.Ac., of Boulder Natural Medicine Clinic speaking about his approach to treating Fibromyalgia and/or CFS.
May 6, 2003 (Tuesday), 1-3 pm – Planning Meeting at Bear Valley Library meeting room.
April 12, 2003 – Spring Fling! Bear Valley Library Meeting Room.
March 15, 2003 – Lecture Meeting: CFS Researcher James Jones, M.D., of the National Jewish Medical and Research Center in Denver, speaking and answering questions about current knowledge of CFS.
February, 2002: no meeting (meetings reduced due to lack of alternate leader).
January 18, 2003: Topical Group Discussion meeting: Meeting type/topic not yet determined (Had previously been announced by postcard to group as: Neuropsychologist Dennis Helffenstein, Ph.D., C.R.C, of Colorado Neuropsychological Associates in Denver and Colorado Springs, speaking and answering questions about some subject related to cognitive dysfunction associated with CFIDS and/or FMS.) Dr. Helffenstein is now unable to come. May do group discussion related to cognitive dysfunction, or something else entirely.
November 16, 2002 – Lecture Meeting: Internist Monique Martin, D.O., of the Center for Global Medicine in Englewood, speaking and answering questions about her use of integrative (traditional and complementary) medicine for treatment of Fibromyalgia and Chronic Fatigue Syndrome.
October, 2002: no meeting (meetings reduced due to lack of alternate leader).
September 21, 2002 – Group Discussion: Fibromyalgia vs. CFS: Same or Different? — plus discussion about any other topics participants want to discuss.
August 17, 2002: (Annual Picnic cancelled on short notice due to lack of leadership help)
June 15, 2002: Video Lecture meeting: David Berg, M.S., on Blood Hypercoagulation.
May 18, 2002: Lecture Meeting with Myra Preston, a Ph.D. Neurophysiologist, from Charlotte, N.C. Dr. Preston will speak about testing and treatment of brain problems associated with CFS/FMS. While in Denver for a week, she will proivde Quantitative EEG brain wave mapping and home based neurotherapy training to interested patients.
April 20, 2002: Group Discussion Meeting (no record of topic)
March 16, 2002: Lecture Meeting: Dr. James Jones of National Jewish Medical and Research Center will provide his annual update on CFS research.
February 16, 2002: Lecture Meeting: Bristol Sorensen, research assistant to Dr. Jones, will speak about their latest research results: "A Model for the Induction of CFS."
January 19, 2002: Lecture Meeting: Pat Taggart, Homeopathic Practitioner, will speak about "Classical Homeopathy".
November 17, 2001: Video Lecture Meeting: Video of Dr. Myra Preston, a Neurophysiologist. Dr. Preston discusses EEG brain wave mapping and neuro-feedback therapy for cognitive dysfunction at the Dallas/Fort Worth Support Group in April 2000.
October 20, 2001: Lecture Meeting: Dr. Milt Hammerly on An Integrative Approach to Fibromyalgia and Chronic Fatigue. Dr. Hammerly is a family practitioner MD who combines traditional and alternative therapies into individualized treatment programs.
September 15, 2001: (apparently no meeting -- unsure why)
August 18, 2001: Annual Picnic: covered patio behind Heitler Hall at National Jewish Center
June 16, 2001: Video Lecture Meeting: Video of Dr. Myra Preston, a Neurophysiologist. Dr. Preston discusses EEG brain wave mapping and neuro-feedback therapy for cognitive dysfunction at the Dallas/Fort Worth Support Group in April 2000.
May 19, 2001: Lecture Meeting: Attorney James Noel will update us on Social Security Disability and Long Term Disability issues. His last update to use was in May of 1999.
April 21, 2001: Video Lecture Meeting: 2nd half, Video of Dr. Paul Cheney, The Pathophysiology, Diagnosis, and Treatment of CFIDS by noted CFS expert Dr. Paul Cheney speaking to the Dallas/Fort Worth Support Group in May of 1999.
March 17, 2001: Group Discussion Meeting about the January AACFS Conference in Seattle (combined room L106/L109 off of the cafeteria at National Jewish Center).
February 17, 2001: Video Lecture Meeting: 1st half, Video of Dr. Paul Cheney, The Pathophysiology, Diagnosis, and Treatment of CFIDS by noted CFS expert Dr. Paul Cheney speaking to the Dallas/Fort Worth Support Group in May of 1999.
January 20, 2001: Lecture Meeting: Dr. James F. Jones of National Jewish Center and a nationally known CFS expert will provide his yearly update on CFS research, and any other notable CFS related news. This meeting will focus mainly on CFS.
November 18, 2000: Topical Group Discussion Meeting: Physical/Behavioral Coping Techniques. Applicable to both CFS and FMS, this is the second in an occasional series about coping techniques. The first topic was Emotional/Psychological Coping Techniques.
October 20 & 21, 2000: Special Event. No meeting at National Jewish Center. Join us for the CFS Documentary Film I Remember Me at the Denver International Film Festival. The film will show at the downtown Tivoli (Auraria Campus) at 6:30 pm Friday October 20, and 1:45 pm Saturday October 21. Kim Snyder, the director and producer of I Remember Me, is expected to be present for discussion after each showing. Call the Film Festival information hotline at 303-820-3456 or ticket line at 303-893-3456. Tickets are $7.50 each.
September 16, 2000: Patient Focus Discussion Meeting: Short video from the 3/10/00 "20/20" episode regarding Chiari Malformation and/or Cervical Spinal Stenosis as possible causes of CFS and/or FMS. Special guest Kathryn Castleberry of Boulder will share her experience following surgery to correct cervical spinal stenosis.
August 19, 2000: Annual Picnic: covered patio behind Heitler Hall at National Jewish Center.
June 2000: Group Discussion Meeting: turned into a support group planning meeting following Sarah Clausen's retirement.
May 2000: Lecture Meeting: Dr. Terry Grossman, a medical doctor from Lakewood who specializes in alternative medicine, covered an alternative theory of causation of CFS and a variety of treatment approaches, all or many of which must be pursued simultaneously. Dr. Grossman feels CFS is a new "disease of civilization" brought on by over use of antibiotics in society, not just by people directly, but by food producers whose antibiotics ultimately become consumed by the human population.
April 2000: Topical Group Discussion Meeting: Disability Issues.
March 2000: Lecture Meeting: Dr. Dennis Helffenstein, a clinical psychologist and rehabilitation Counselor from Colorado Neuropsychological Associates in Denver, reviewed neuro-cognitive problems associated with CFS and discussed techniques for enhancing communication when cognitive problems are a factor.
February 2000: Topical Group Discussion Meeting: featured the 10/24/99 CNN video segment about Chronic Fatigue Syndrome, and the 1/4/00 Dateline video segment about Fibromyalgia.
January 2000: Lecture Meeting: Dr. Jai Gottlieb, a holistic medical doctor from Boulder, suggested supplementing and/or replacing the many external interventions we try with introspective-based interventions. He advocated moving beyond various physical therapies and/or oral supplements, whether over-the-counter or prescription.
November 1999: Lecture Meeting: Dr. James Jones, a nationally known CFS expert from National Jewish Center in Denver, reviewed the history and possible causes of CFS, and his current research.
October 1999: Topical Group Discussion Meeting: Nutrition and CFS. Attendance was small due to a one-day snow storm. Dr. Barbara Smith, of the Department of Food Science and Human Nutrition at
Colorado State University, expected to attend but was prevented by the snow. But later she sent a page of ideas entitled "Quick and Easy Meals". Find it later in this newsletter.
September 1999: Carl Grimes, of Healthy Habitats.
August 1999: Annual Picnic.
June 1999: Video on Guaifenesin Treatment.
May 1999: Attorneys James Noel and Robert Liebross, on disability issues.
April 1999: Topical Group Discussion Meeting: Experiences with Local Doctors (met in cafeteria).
March 1999: Dr. James Jones (and Dr. Barbara Smith of CSU).
February 1999: Topical Group Discussion Meeting: Emotional/Psychological Coping Techniques
January 1999: Topical Group Discussion Meeting: Symptoms and Treatments.
November 1998: Discussion Meeting: Personal Stories; Future topics.
RMCFA has been meeting since approximately 1986. Sometime in the future, perhaps more of our prior meetings will be listed here, with links as available to relevant web pages.