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Chase Giving Front and Center for Community Organizations
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Video on how to vote
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CFSAC meeting was held
November 8-9th
CFSAC will have the full audio and video of the November 8-9 meeting archived soon on the CFSAC website
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PANDORATOWN HALL - Our Voices, Our Message, Our Lives- We Need a Hero Campaign
Please join us on Nov 16, 2011- 12:00 PM for PANDORA's first Virtual Town Hall with Mr. Patrick Erin Murphy, a candidate running for the U.S. House of Representatives. Mike Munoz will be a panelist. If you are unable to attend, PANDORA will be archiving.
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Contact:
:: www.rmcfa.org
:: link@rmcfa.org
:: 303.423.7367
:: 303.4.CFS. FMS
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RMCFA Board of Directors
Paul Haines
Kitty Sherback
Tim Smith
Stacey Townsend
Jane Wallace
Mike Munoz
Officers
President
Tim Smith
Executive Director and
Coalition 4 ME/CFS
& Fibromyalgia
Steering Committees
Mike Munoz |
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Please take two minutes
to make a world of Difference...
Vote for RMCFA
in the Chase Giving project
If you voted, please ask firends and family.
If you haven't please don't wait.
We need your help!
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Next Event:
Tuesday, December 6, 2011
Suzanne Vernon PH.D.
Scientific Director
CFIDS Association of America
4-6 PM
For More information
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CFSAC Recommendation Affirms Coalition 4 ME/CFS ICD-10 Proposal to NCHS
RMCFA and the Coalition 4 ME/CFS would like to thank the Chronic Fatigue Syndrome Advisory Committee (CFSAC) for making a strong statement in support of the Coalition's proposal to reclassify CFS in the clinical manual used in the U.S. That proposal was submitted to the National Center for Health Statistics (NCHS) that will be making the decision.
Mike Munoz, RMCFA Executive Director, testimony to the CFSAC Committee on behalf of RMCFA and the Coalition 4 ME/CFS regarding the IDC-10-CM proposal can be read here
Prior to reading the recommendation and before the vote, Dr. Nancy Klimas said to other CFSAC members: "The concept here is that Option 1 was, in the feeling of our subcommittee, the best of the options to be lumpers rather than splitters on the terminology of ME/CFS and post viral syndrome, put that all together, with the idea that we are moving toward name change and the name change is likely to not be multiple names. And to have multiple divisions is going to be rather difficult when we have this ICD-10 thing come upon us for quite some time. If we could put things under a single code, I think we are going to be more successful in our name change effort." The coalition has prepared a letter to medical professionals
why the coalition option 1 is preferred.
You can see the video of this the CFSAC Committee vote, part of the historic change that will improve the quality of life of all with ME/CFS in the United States and other countries.
Please sign this petition to send comments in support of Coalition Option 1 and rejecting NCHS Option 2 before the November 18, 2011 deadline.
If you have further questions, please see the Coalition FAQ page and the coalition proposal.
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Rituximab shows early success in Norwegian study published in PlosONe
Two injections of the cancer drug Rituximab, (a B-cell suppressor) which suppresses the immune system, relieved chronic fatigue symptoms in 10 of 15 patients in a phase II trial. This supports the theory that CFS has an autoimmune component.
Two articles:
Research1st
ABC News
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News and Views
Sleep Differences Separate Fibromyalgia From Chronic Fatigue Syndrome - about.com - also Prohealth
Savella Brings Relief Long-Term in Fibromyalgia - Medpage today
Dr. Daniel Peterson describes the pilot study that NIDA is going to help fund - RMCFA YouTube channel video
PANDORA wins CITGO fueling for good
IACFS/ME conference summary - Dr Charles Lapp
Scientist Who Led XMRV Research Team Let Go - Amy Dockser Marcus
XMRV Theory Is Set Back in Chronic Fatigue Syndrome Study
Study: Exercise may help memory of Fibromyalgia patients
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