2008 News

August

             (Thanks to Cort Johnson for providing this content and these links.) 

• Dr. Ken Friedman on the Federal Response to ME/CFS - click here 
• Dr. Ken Friedman on the ME/CFS Research: Roadblocks and Opportunities - click here
• Mad About FM/CFS: RESCIND Founder and Awareness Day Founder Tom Hennessey - click here
• The Immune System, Treatment and Hope for the Future: Focus on Dr. Nancy Klimas - click here
• The Symposium on Viruses in Chronic Fatigue Syndrome (ME/CFS) - a two part overview - click here
• A Patient Returns: An Interview with author Martha Kilcoyne - click here

 May/June

      View/Listen - TV and Radio CFS Public Service Announcements (PSA's)

• Science of CFS: Past, Present and Future- webinar w/S. Vernon - click here
• Muscle Pain in Chronic Fatigue Syndrome (ME/CFS) - click here
• FDA Approves Cymbalta (Duloxetine) for Fibromyalgia - click here
• Research Roundup - 3 fascinating studies - click here
• CFS being caused by a rare brain infection? - click here
• Study measured metabolic dysfunction of hippocampus in FM - click here
• Alternative (to) Exercise - click here
• CFS/Looking for a Breakthrough - CFIDS chronicle/winter 2008 - click here
• Wichita Study of Cortisol and Interleukin 6 - click here
• Conference to Examine Viral Infections in CFS - click here
• Special Series: The Biology of Sleep - click here
• Newly-recognized syndrome may exist in ME/CFS subset - click here
• Low magnesium & zinc associated w/FM pain, fatigue levels - click here
• A profile/survey of ME/CFS Patients - click here
• Study suggests ME/CFS subsets with different sleep patterns - click here

February

• Q&A Session with Nancy G. Klimas, MD  - click here
• Q&A Session with Charles Lapp, ME - Authority on ME/CFS/FM - click here
• Name Change Website Launched - click here
• Educational DVD on Fibromyalgia - Watch It Online- click here
• Cortisol Concentrations in a CFS Population - click here 

2007 News

November 2007

• Dr. Suzanne Vernon named scientific director at the CFIDS Association of America - click here
• CFS name change moves ahead - click here
• CFS Heart Rate Dysfunction Persists in Sleep - click here
• FDA Approval for Ampligen Sought - click here
• Can Staph vaccine treatment improve CFS & FM symptoms?- click here
• Antidepressant trials review suggests duloxetine safe & effective for FM - click here
• Update on Antiviral Medication and Comprehensive CFIDS Management  - click here
• Charles W. Lapp, MD - CFS Pioneer, Researcher, and Clinician - click here
• Bright Light Treatment of Winter Depression - click here
• Fibromyalgia: Looking Back Over the Last Ten Years - click here
• The World FM Community - click here
• Treatment blocks pain without disrupting other functions - click here

October 2007

• New Study Links CFS to Enterovirus Infection - click here
•  Dr. Clauw's Golden Rules for CFS and Fibromyalgia Patients - click here
• Q&A Session with ME/CFS and Fibromyalgia Dr. Lucinda Bateman, MD - click here
• NIH Announces RFA for Chronic Pain Syndromes, Including CFS - click here
• Controlling Pain - Benjamin Natelson, MD - click here
• CFS Researcher Gets Grant from NIH to Study Retrovirus - click here
• Dr. David Bell publishes new book - Cellular Hypoxia & Neuro-Immune Fatigue - click here
• CFS HHV-6-Possible Cure? Physicians Encouraged by Valcyte - click here
• CFS photo exhibit will be in Denver - October 11- 14 at Park Meadows Mall
• Dr. David Bell's -Cellular Hypoxia in Neuro-Immune Fatigue - click here
• Live Q&A session with Dr. Bateman - Friday. September 7th - click here
• CFS and the Exercise Conundrum- Dr. Bateman - click here
• Two New Studies Invite Fibromyalgia Patients' Participation - click here
• Chronic Fatigue Syndrome' Name Challenged- - click here
• FMS New Paradigm: Neural Sensitization and Its Implications for Treatment - click here
• Management of patients with Fibromyalgia using biofeedback: A randomized control trial - click here
• CDC scientists publish CFS Georgia population study - click here
• FDA approves Lyrica (pregabalin) for Fibromyalgia - click here
• The New York Times "Chronic Fatigue No Longer 'Yuppie Flu' "-click here
• Two reports: "Genes Linked to Postinfective CFS" & "The infection Connection"- click here - click here
• Causes of death among patients with CFS - click here
•  Blood supply dysregulation cause of Fibromyalgia pain? - click here
• Dr. Pall - New Explanation for CFS and Fibromyalgia - click here
• Hypoglycemia a problem for CFS and Fibromyalgia patients - click here
•  
• "The Changing Science of Pain" (Newsweek article) - click here
• Pediatric CFS Case Definition Published- click here
• CFS Advisory Committee Meeting Report - click here
• DePaul study - Functioning with multiple diagnosis" click here
• Psychological distress and recurrence of upper respiratory tract infections in CFS" click here
• Fibromyalgia Myth Busting " click here
• Cal State Fulerton opens Fibromyalgia Research and Education Center
• 2007 IACFS conference overview - click here
• Cognitive Behavioral Therapy - click here
• Chronic Fatigue Syndrome in Young People: Myths & Special Considerations - click here
• Neuroimaging Tracks Mental Fatigue in CFS " click here
• American College of Physicians article - "Putting chronic fatigue syndrome's myths to bed" click here
• Research!America distributes flier about CFS to Capitol Hill, health agency leaders, public health officials, research academics, governors, state legislators and media professionals. " click here
• Cellular and Genetic Studies Under Way" click here
• Recent Drug Trials Offer Hope- click here Whittemore Peterson Institute for Neuroimmune Research website - click here  Dr. Bell - Lydonville News - November 2006 e-news Dr Cheney lecture - CFS and heart dysfunction - download
• Dale Guyer, MD, Discusses the Integrative and Molecular Treatment of Chronic Fatigue Syndrome and Fibromyalgia -
  click here
• Jury Awards FM/CFS Patient $15.4 Million in Disability Suit - - click here
• Sleep Dysfunction in CFS - click here
• Preliminary Awareness Campaign Statistics - click here
• Kent Holtorf, MD, on Treating Chronic Fatigue Syndrome & Fibromyalgia - An Update - click here
•  
• View IACFS Conference Summary By Anthony Komaroff, M.D. Professor of Medicine, Harvard Medical School - - click here
• IACFS lecture "Making the Most of Your Doctors' Appointments" by Lucinda Batemen - click here
• Laymen's Guide/Recap to the 8th IACFS Professional Conference - Four part series by Cort Johnson - click here
  Pregabalin (Lyrica) Offers Pain Relief Option For Fibromyalgia in Long Term Study- click here
• CFS name change - What Is An Encephalopathy? - click here
• Exercise Testing Uncovers Abnormalities in CFS -click here
• The Disability Paradox, and How a Fibromyalgia Specialist Can Help Patients Preserve Gainful Employment - Dr. Mark J. Pellegrino, MD - click here
• Sleep Is Vital For Good Health - In CFS and FM by Dr. Sarah Myhill, MD - click here
• Whole-Genome ME/CFS Study Resumes: Recruits Subjects - click here
• Politics and CFS Research- click here
• Valganciclovir (Valcyte) shows promise in some CFS patients
• National Fibromyalgia Association publishes brain study of Fibromyalgia patients
• Overwhelming Evidence Legitimizes Fibromyalgia Pain
• Journal of the American Medical Association (JAMA) recognizes CFS - click here
• American Medical Association (AMA) validates CFS to Physicians - click here
• NIH Announces 7 Grants for CFS Research Valganciclovir (Valcyte) shows promise in some CFS patients
• National Fibromyalgia Association publishes brain study of Fibromyalgia patients
• Overwhelming Evidence Legitimizes Fibromyalgia Pain
• Journal of the American Medical Association (JAMA) recognizes CFS - click here
• American Medical Association (AMA) validates CFS to Physicians
Studies Explore Childhood Fatigue and CFS- click here - click here

2006 News

• NIH Announces 7 Grants for CFS Research
• CFS Advisory Committee meeting report - click here
• CDC CFS press Conference - click here
• View 6 minute video file from the press conference - click here
• NBC affiliate in Rochester NY - Excellent 6 minute video report featuring Dr. Bell - click here
• NBC Nightly News story about the campaign - CFS! -  click to view story and replay video
• CBS News report - click here
• Additional media coverage - click here
•  
• Dr. Cheney - CFS & Cardiac Issues
• Patent Application for CFS Diagnostic Test
• Dr. Bell - Lydonville News - September 2006 e-news
• OFFER 2007 Patient/Provider conference May 4th and 5th
• 2006 Houston Fibromyalgia Patient Conference
• CFIDS in the news  - Oprah and other CFIDS coverage
• Photo Exhit "The Faces of CFS"
• Dr. Reeves, Dr. Kind and Laura Hillenbrand on Minnesota Public Radio
• CAMDA Challenge (Duke University) Witchita survey analysis analysis
• CAMDA Challange papers
• Report on the July 17, 2006 Meeting of the DHHS CFS Advisory Committee 
• 8th International IACFS Conference on CFS and Fibromyalgia January 12-14 2007 
• CDC's new CFIDS website
• CFIDS Association of America new "Sparks!" awareness campaign website
• CDC announcement "Computational Challenge" Witchita gene study/webcast
• CFIDS Association "Computational Challenge" Witchita gene study announcement
• CFIDS Association of America's 65 page special edition Chronicle "The Science and Research of CFIDS"
• CDC and The CFIDS Association of America launch $4 million national awareness campaign

• CFS Gene Study Targets Serotonin Function - click here
• FDA approvals of FM drugs increasing awareness - click here
• Updated estimate of U.S. FM prevalence released - click here
•  DHHS CFS Advisory Committee report- click here
• The Gene Teams - CFS Computational Challenge - click here
• CFIDS Assoc names Suzanne Vernon SD - click here
• CFS Heart Rate Dysfunction Persists in Sleep - click here
• CFS News from Capitol Hill - click here
• Q&A Session with R. Paul St. Amand, MD - click here
• Mayo first test diagnosing Chronic Myofascial Pain - click here
• Significant improvement with growth hormone in FM - click here
• UK genomic profilers identify 7 ME/CFS subsets - click here
• Brain scans sensory grey matter increase in FM patients - click here
• Forest Labs/Cypress Submitt NDA For Milnacipran For Treatment Of FM - click here

• RMCFA featured in Prohealth article - click here

• Taking Stock: ME/CFS Advocacy Making Headway - click here

• Fibromyalgia: A Disorder of the Brain? - click here

• More evidence that FM turns up sensory signal 'volume' - click here

• Science and Legal News on Postexertional Malaise - click here

• Study Shows Low Cortisol in Women with CFS - click here

• Could B-12 Deficiency Be Causing Symptoms? - click here

• Multiple Chemical Sensitivity (MCS) - What Is It? - click here

• Missouri Bill Targets Help for Fibromyalgia Patients - click here

• May 12, 2008 - FM awareness day - click here

• Hypothyroidism Testing Controversy & Therapies - click here

• IBS Linked to Abnormal Brain Activity - click here

• Chronic Pain Harms the Brain - click here

  
  

• ME/CFS as a Mitochondrial Disease -Dr. David S. Bell, MD, FAAP - click here 
  &  NEW April 2008 Lyndonville newsletter - click here
• Pain level in Fibromyalgia linked to neurotransmitter glutamate - click hereMuscle Cell Fatigue w/Exercise Similar to Heart Failure Fatigue - click here

• FM patients get less stage 2 sleep - and duration correlates with pain - click here

• Etiology, Exercise and CFS By Suzanne Vernon, Phd - click here

• The Research/Advocacy Connection - click here

•  

• Early-life health problems unique to those developing ME/CFS? - click here

• Cardiac tests differ in CFS & Fibromyalgia - click here

• Dopamine Theory' doctor finds another piece of the FM puzzle - click here

• More evidence of abnormal cortisol rhythms in ME/CFS - click here

• Impact of ME/CFS on U.S. economy tops $18 billion a year - click here

• Stress strong predictor of ME/CFS after parvovirus infection - click here

• Your Immune System & How it Works/ William Collinge, PhD - click here

• CFS Advisory Committee to Meet May 5-6 - click here

• Recently Published CFS Studies - click here

• Q&A with Scientific Director Suzanne Vernon -  CFIDS Association - click here