2011 Research and News

 

XMRV updates and information can be found here as well as below

 

 

 

September 2011

International Consensus Criteria Published for Myalgic Encephalomyelitis - An independent consensus panel of international experts has published in the Journal for Internal Medicine a proposed new criteria for myalgic encephalomyelitis (ME). 

 

Chronic Fatigue Initiative -Accelerating the medical community's knowledge of Chronic Fatigue Syndrome through research grants and collaboration.

   

Applying Venture Philanthropy to Chronic Fatigue Syndrome

- By Amy Dockser Marcus  

 

Kathleen Light's Group Secures Million-Dollar NIH Award

- Kim McCleary

 

Chronic Fatigue Syndrome Study Deals a Blow to a Viral Theory - David Tuller - NY Times - Also XMRV in Science: Take Three - Kim McCleary

 

Reduced insular gamma-aminobutyric acid [GABA] in fibromyalgia - Source: Arthritis & Rheumatism, Sep 13, 2011 - ProHealth

 

Sensory Overload Part of Your Fibro? - Fibromyalgia Network

 

NCHS to Consider Reclassifying CFS as Neurological Disease Sep 14 - Coalition 4 ME?CFS - Prohealth

 

Annette Whittemore (WPI) on Nevada newsmakers - video  

 

Cerebral Blood Flow Alterations in Pain-Processing Regions of Patients with Fibromyalgia - Prohealth  

 

 What might cuase ME? - Giles Meehan - video (RMCFA Youtube channel)  

 

Vagus Nerve Stimulation for Fibromyalgia Treatment - By Adrienne Dellwo

 

The Center for Translational Medicine at the Whittemore Peterson Institute ("WPI") is proud to welcome Dr. Robert S. Fredericks as our first medical practitioner. - Prohealth

 

Genetic fibromyalgia subgroup with higher BMI & inflammation identified - UT San Antonio - Prohealth

 

Harvard EEG tests distinguish CFS from major depression patients; temporal lobe implicated - Prohealth

 

June 2011

More Doubt Cast on Study of Chronic Fatigue - Amy Dockser Marcus - Wall Street Journal

Two Studies Examine Syndrome of Fatigue/XMRV - David Tuller - New York Times

Gene expression alterations at baseline and following moderate exercise in patients with CFS and FM - CAA - study abstract 

Florida International University Joins PANDORA as Academic Partner for Future NEI Center
 

The NOW Foundation will present its 2nd annual Victoria J. Mastrobuono Women's Health Award to Nancy Klimas, M.D.
 

CFIDS Association of America launches research website and names new Scientific Advisory Board

Further Evidence of Immune Dysfunction in CFS Syndrome - Prohealth

Serotonin & Blood Flow in Fibromyalgia & Chronic Fatigue Syndrome - Adrienne Dellwo - About.com

ME/CFS Breakthrough by Interdisciplinary Adelaide (Australia) Research Group using MRI

CFS, Misnamed, Misunderstood, Misdiagosed - Llewellyn King - White House Chronicles
 

Study Finds Skin Itself May Be Ignition Point in Neuropathic Pain - ProHealth
 

IACFS/ME Professional Conference Announced -  Translating Evidence into Practice - September 22-25, 2011 · Ottawa, Ontario, Canada - several fibromyalgia workshops are included

   

Demonstrations in Washington DC and San Francisco - Health and Human Services -San Francisco Chronicle story

 

WATCH: Dr Bell's 25-Year Follow-Up on Lyndonville Outbreak Patients - Prohealth


May 2011

NIH CFS Conference
, XMRV Debate Heats Up - Amy Dockser Marcus - WSJ

The Stigma of Chronic Fatigue Syndrome - Toni Bernhard, J.D. - Psychology Today 

How Old Viruses May Haunt Us - Amy Dockser Marcus - WSJ    

"The November Factor": Dr. Bell on ME/CFS & the Flu that Isn't Flu - ProHealth.com by Dr. David S Bell, MD

Avoiding the Disability Claim' Brush-Off' - What You Need to Know - ProHealth

Dr. Charles Lapp's Recommendations on Supplements for ME/CFS and Fibromyalgia - ProHealth

To the heroes - Chronic Fatigue Syndrome: A Salute To 10 Kinds of Heroes - EmpowHer.com 

6 Tips for College Students with CFS - Careers and classes.com

Fibromyalgia: Diagnosing Fibromyalgia: Common Misdiagnoses - WebMD

CFS in teens not common but very serious & under-diagnosed by GPs - ProHealth

Facing Surgery
With Fibromyalgia & Chronic Fatigue Syndrome - Adrienne Dellwo - About.com

Assessment of a 44 gene classifier for the evaluation of chronic fatigue syndrome from peripheral blood mononuclear cell gene expression - ProHealth

New Genetics Discoveries in Fibromyalgia - Adrienne Dellwo - About.com

Video - The White House Chronicles - CFS - an orphan epidemicGuests: Amy Marcus, The WSJ; Frances Stead Sellers, The W. Post; Deborah Waroff; and Dr. Leonard Jason

CFS Proves Chronically Mysterious -  My Health News Daily

Video - What is it like having ME/CFS? - GetWellFromME
 

March 2011

Proteins found in spinal fluid may lead to biomarker - stories below:
 

A Step Closer to Tests for Chronic Fatigue Syndrome and Lyme Disease - Amy Dockster Marcus

Distinct Cerebrospinal Fluid Proteomes Differentiate Post-Treatment Lyme Disease from Chronic Fatigue Syndrome - PLoS ONE abstract

Evidence surrounding Chronic Fatigue Syndrome - Spinal fluid proteins finding - CBS Early Show video

New study on Chronic Fatigue Syndrome - CBS Evening News with Katie Couric - video

New Center of Excellence:

Stanford University and Dr. Montoya has launched CFS center of excellence initiative - website

 

Wall Street Journal Articles:

Unlocking Chronic Fatigue Syndrome
- Amy Dockster Marcus - This article was featured in the print edition WSJ Personal Journal section

The Puzzle
of Chronic Fatigue - Amy Dockster Marcus

Rural NY Town Becomes Chronic Fatigue Laboratory
- Jason Bellini - Must see video complimenting "The puzzle" article above

Amid War
on a Mystery Disease, Patients Clash With Scientists - Amy Dockster Marcus  - This article was featured on the front page of the WSJ.  

Chronic Fatigue Syndrome in the Spotlight - Katherine Hobson

An Illness That's Hard To Live With-Or Define - Dr. Lenny Jason

XMRV and the Blood Supply: More Study Needed - Amy Dockster Marcus

XMRV: Study
Shows Virus Can Cause 'Persistent Infection' in Monkeys - Amy Dockster Marcus

New York Times Article:  

Defining an Illness Is Fodder for Debate - David Tuller - featured in the NY Times printed edition health section  

Other:

National Fibromyalgia & Chronic Pain Association (NFMCPA) launches 

Dr. Lapp on XMRV & Ampligen - Information that may "change the field of medicine forever"

Living well
: Help for fibromyalgia - FOX 25 Morning News video

A brain MRI study of chronic fatigue syndrome: Evidence of brainstem dysfunction and altered homeostasis - ProHealth

OFFER launches Youtube channel for educational videos - It will feature their monthly CFS & FM educational meeting videos
 

January 2011

RMCFA and the ME/CFS World Patient Alliance join forces

Chronic Fatigue Syndrome Patients Run First-ever Ad in The Washington Post

RMCFA has joined the ME/CFS World Patient Alliance, Pandora, Vermont CFIDS Association, Rescind and the Wisconsin ME/CFS Association in an awareness campaign. The 1/2 page ad ran in the Washington Post Monday December 6th. You can see the ad here.. Read more about the campaign here.

The ad is out! Read the PRnewswire press release 

RMCFA Press release

Campaign message delivered to NY Times square - "ME/CFS patients are invisible no more"

 

Videos and webinars:


FDA advisory committee recommending that people with ME/CFS be barred from donating blood
 

The American Red Cross has made a policy change for CFS Donors

To protect the blood supply ARC will defer CFS patients and distribute handout (left)

Read the statement here

Click to see full size poster


December 2010

Webinars:

November 2010

 

 

 

Archive News

2008 News

August

             (Thanks to Cort Johnson for providing this content and these links.) 

  • Dr. Ken Friedman on the Federal Response to ME/CFS - click here
  • Dr. Ken Friedman on the ME/CFS Research: Roadblocks and Opportunities - click here
  • Mad About FM/CFS: RESCIND Founder and Awareness Day Founder Tom Hennessey - click here
  • The Immune System, Treatment and Hope for the Future: Focus on Dr. Nancy Klimas - click here
  • The Symposium on Viruses in Chronic Fatigue Syndrome (ME/CFS) - a two part overview - click here
  • A Patient Returns: An Interview with author Martha Kilcoyne - click here

 May/June

      View/Listen - TV and Radio CFS Public Service Announcements (PSA's)

  • Science of CFS: Past, Present and Future- webinar w/S. Vernon - click here
  • Muscle Pain in Chronic Fatigue Syndrome (ME/CFS) - click here
  • FDA Approves Cymbalta (Duloxetine) for Fibromyalgia - click here
  • Research Roundup - 3 fascinating studies - click here
  • CFS being caused by a rare brain infection? - click here
  • Study measured metabolic dysfunction of hippocampus in FM - click here
  • Alternative (to) Exercise - click here
  • CFS/Looking for a Breakthrough - CFIDS chronicle/winter 2008 - click here
  • Wichita Study of Cortisol and Interleukin 6 - click here
  • Conference to Examine Viral Infections in CFS - click here
  • Special Series: The Biology of Sleep - click here
  • Newly-recognized syndrome may exist in ME/CFS subset - click here
  • Low magnesium & zinc associated w/FM pain, fatigue levels - click here
  • A profile/survey of ME/CFS Patients - click here
  • Study suggests ME/CFS subsets with different sleep patterns - click here

February

  • Q&A Session with Nancy G. Klimas, MD  - click here
  • Q&A Session with Charles Lapp, ME - Authority on ME/CFS/FM - click here
  • Name Change Website Launched - click here
  • Educational DVD on Fibromyalgia - Watch It Online- click here
  • Cortisol Concentrations in a CFS Population - click here 

 

2007 News

November 2007

  • Dr. Suzanne Vernon named scientific director at the CFIDS Association of America - click here
  • CFS name change moves ahead - click here
  • CFS Heart Rate Dysfunction Persists in Sleep - click here
  • FDA Approval for Ampligen Sought - click here
  • Can Staph vaccine treatment improve CFS & FM symptoms?- click here
  • Antidepressant trials review suggests duloxetine safe & effective for FM - click here
  • Update on Antiviral Medication and Comprehensive CFIDS Management  - click here
  • Charles W. Lapp, MD - CFS Pioneer, Researcher, and Clinician - click here
  • Bright Light Treatment of Winter Depression - click here
  • Fibromyalgia: Looking Back Over the Last Ten Years - click here
  • The World FM Community - click here
  • Treatment blocks pain without disrupting other functions - click here

October 2007

 

  • Studies Explore Childhood Fatigue and CFS- -

  

2006 News

 

  • CFS Gene Study Targets Serotonin Function - click here
  • FDA approvals of FM drugs increasing awareness - click here
  • Updated estimate of U.S. FM prevalence released - click here
  •  DHHS CFS Advisory Committee report- click here
  • The Gene Teams - CFS Computational Challenge - click here
  • CFIDS Assoc names Suzanne Vernon SD - click here
  • CFS Heart Rate Dysfunction Persists in Sleep - click here
  • CFS News from Capitol Hill - click here
  • Q&A Session with R. Paul St. Amand, MD - click here
  • Mayo first test diagnosing Chronic Myofascial Pain - click here
  • Significant improvement with growth hormone in FM - click here
  • UK genomic profilers identify 7 ME/CFS subsets - click here
  • Brain scans sensory grey matter increase in FM patients - click here
  • Forest Labs/Cypress Submitt NDA For Milnacipran For Treatment Of FM - click here

 

  • RMCFA featured in Prohealth article - click here

  • Taking Stock: ME/CFS Advocacy Making Headway - click here

  • Fibromyalgia: A Disorder of the Brain? - click here

  • More evidence that FM turns up sensory signal 'volume' - click here

  • Science and Legal News on Postexertional Malaise - click here

  • Study Shows Low Cortisol in Women with CFS - click here

  • Could B-12 Deficiency Be Causing Symptoms? - click here

  • Multiple Chemical Sensitivity (MCS) - What Is It? - click here

  • Missouri Bill Targets Help for Fibromyalgia Patients - click here

  • May 12, 2008 - FM awareness day - click here

  • Hypothyroidism Testing Controversy & Therapies - click here

  • IBS Linked to Abnormal Brain Activity - click here

  • Chronic Pain Harms the Brain - click here

 


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