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The Rocky Mountain CFS/ME & FM Association
                                                                helping patients for 28 years 

    Advocate for research
    Awareness for understanding
    Educate for patient care

    Support for hope

     
     RMCFA is 501(c)(3) Non-profit organization

     The NEIDs Network of Organizations



ME/CFS affflicts an estimated 1 million people in the US and 17 million worldwide

Fibromyalgia afflicts 3-5% of the US population

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One Voice, One Community, One Cause!™
 

   
Join our e-mail list

 

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RMCFA response letter to the IoM regarding the provisional panel

RMCFA and 12 other organizations submit letter to NCHS objecting to the DSM-5 Somatic Symptom Disorder into the ICD-10-CM

RMCFA submits list of experts to the Institute of Medicine

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Radiant Research is conducting a clinical research study on an investigational medication for fibromyalgia For details, click below, then click the "Fibromyalgia Research" link on that page.

 

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Information about RMCFA's 6/29/2013 event with Dr. Vernon and Dr. Bateman:

 

Various SolveCFS BioBank links, and
various links related to Dr. Bateman's Presentation

are available at RMCFA's Event Archive page.
 

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Next Event:

 
Not yet Scheduled (and may be a while...)
 
We hope to hold a Membership and Board Meeting in the first few months of 2014, with purpose to see if RMCFA can be revitalized by the volunteer help of more people.

For Events, No Perfumes or Colognes are allowed! 

For more meeting details see RMCFA's Event Page.

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RMCFA Public Service Announcement

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IACFS Clinical Primer for physicians
 
Letter to The American Academy of Family Physicians (AAFP)
 

Joint Request from the ME/CFS Community for Action to Secretary Sebelius, Assistant Secretary Koh, and Deputy Assistant Secretary Lee - here

We are asking Secretary Sebelius to convene a meeting between ME/CFS patient representatives and key representatives from across DHHS to better understand our concerns and then work with us to formulate a strategic, coordinated and fully-funded response to the challenge of ME/CFS.

 

Please take time to read and sign this petition supporting the Joint request effort - Thank you!

Over the past 25 years, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has devastated the lives of more than one million Americans. But to date, very little has been done to help these patients.

 

 

RMCFA letter to American Psychiatric Association rejecting the current draft of the DSM-5

 

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Mike Munoz's testimony to the CFS Advisory Committee - here

Please sign the Coalition 4 ME/CFS ICD petition - here

 

 

CFS Advisory Committee historic ICD-10 recommendation to the Coalition 4 ME/CFS proposal to reclaasify CFS to G93.3

 

 

Coalition 4 ME/CFS Proposal to Reclassify 
Chronic Fatigue Syndrome (CFS) in the ICD-9-CM and ICD-10-CM
Accepted for Review by the National Center for Health Statistics
See full announcement   here  
 
 

 

Coalition 4 ME/CFS Call to Action: DSM-5 - here

RMCFA letter to the DSM-5 Task Force can be veiwed -  here

This action is for ME/CFS and fibromyalgia individuals and organizations.DSM-5 could be disaterous for ME/CFS and fibromyalgia patients. The deadline for comment is July 15th




See our YouTube channel and Public Service Announcement




 

Obama Town Hall meeting Reno 4/21 - Courtney Miller asking President Obama about CFS funding - Go to the 47th minute to see the exchange or direct link

Also NEW! Take action campaign from Bob Miller - Go to RMCFA Facebook for Letter writing campaign to President Obama - You can make the difference!

 

News Out: RMCFA joins the Coalition 4 ME/CFS
 
Coalition 4 ME/CFS - Press Release - Website
 
 
 
 

  Find us on FacebookRMCFA Launches Facebook Page

   Come Join Us On Facebook 

We will be sharing the latest news, research, events, videos, commentary, patient stories, occasional humor
and how you can get involved to make a difference. So come on over and join in the conversation.



News and Educational Webinars...

 Join us on Facebook for the latest newsFind us on Facebook


XMRV news page



Facts about CFIDS and Fibromyalgia?  CFIDS - Fibromyalgia

  • 3-5 percent of the US population meet the definition for FM.
  • CFS may affect as many as 1 million Americans and 17 milion people worldwide, more than Multiple Sclerosis, Parkinson's, Lupus, Lung Cancer or Ovarian cancer.
  • Less than 20% of Americans with CFS have been diagnosed due to lack of education and awareness. 
  • CFS and Fibromyalgia are as debilitating as Multiple Sclerosis, Lupus, Rheumatoid arthritis and other similar chronic conditions.  
  • The lost annual economic impact of CFS is estimated to be more than $9.1 billion

 

CFS Experiences sought for inclusion in a book about CFS/ME/CFIDS

 

Physician and Medical Provider Education & Awareness:

 


   Rocky Mountain CFS/ME & FM Association   |   303-4-CFS-FMS  ( 303-423-7367 )