We did not manage to hold a Membership and Board Meeting in the first few months of 2014 (with purpose to see if RMCFA can be revitalized by the volunteer help of more people). We still hope to hold a meeting of some sort, now looking to Spring of 2016.
Joint Request from the ME/CFS Community for Action to Secretary Sebelius, Assistant Secretary Koh, and Deputy Assistant Secretary Lee - here
We are asking Secretary Sebelius to convene a meeting between ME/CFS patient representatives and key representatives from across DHHS to better understand our concerns and then work with us to formulate a strategic, coordinated and fully-funded response to the challenge of ME/CFS.
Please take time to read and sign this petition supporting the Joint request effort - Thank you!
Over the past 25 years, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has devastated the lives of more than one million Americans. But to date, very little has been done to help these patients.
RMCFA letter to American Psychiatric Association rejecting the current draft of the DSM-5
Mike Munoz's testimony to the CFS Advisory Committee - here
Please sign the Coalition 4 ME/CFS ICD petition - here
CFS Advisory Committee historic ICD-10 recommendation to the Coalition 4 ME/CFS proposal to reclaasify CFS to G93.3
Coalition 4 ME/CFS Proposal to Reclassify
Chronic Fatigue Syndrome (CFS) in the ICD-9-CM and ICD-10-CM
Accepted for Review by the National Center for Health Statistics
We will be sharing the latest news, research, events, videos, commentary, patient stories, occasional humor
and how you can get involved to make a difference. So come on over and join in the conversation.