Grassroots Action Center:
Get involved for change...
Change to fund research
Change in education and public awareness
Change in medical care.
Write your representatives and government health agency officials and thank reporters and advocates for ME/CFS coverage.
Watch for continuing bullentins and efforts here and can get involved!
What you can do to help...
DSM-5 Comments are needed now! - Please take time to comment - Deadline is June 15th
Coalition 4 ME/CFS Call to Action: DSM-5
See announcemrnt here and please take time to comment
This action is for ME/CFS and fibromyalgia individuals and organizations
NEW! Take action Campaign... Letter Writing Campaign to President Obama
Letter writing to President Obama following Courtnet's Miller Q & A at the town Hall Meeting 4/21
or Go to RMCFA Facebook for instructions
"Time for Action" Campaign before CFSAC'S "Speak Up for ME"!!!
For ME/CFS Patients, Their Families and Friends
To All ME/CFS Patients: From Robert Miller and Family
As you know President Obama made a promise to all ME/CFS patients and their families at a Town Hall meeting in Reno last week.
He stated: "Now, I will confess to you that, although I’ve heard of chronic fatigue syndrome, I don’t have expertise in it. But based on the story that you told me, (Courtney Miller)what I promise I will do when I get back is I will have the National Institute of Health explain to me what they’re currently doing and start seeing if they can do more on this particular ailment. Okay? "
So, it's time to let President Obama know we appreciate his personal attention and promise by sending him a brief thank you for looking into our ignored illness. The more he hears from us, the more he will understand the gravity of our situation. We ask patients, their families, friends and loved ones to email President Obama at the link below. It is a Fill In Page which makes it easy. In the Subject line: Select Health Care. Please make your letter brief and to the point. I have provided an example below along with the link:
Dear Mr. President,
I wish to thank you for your promise to Chronic Fatigue Syndrome (ME/CFS) patients at the recent Reno Town Hall Meeting, where you said that you will ask NIH to explain what the institute is doing to research our illness and encourage them to do more. I believe that scientific research can restore my life.
Name: John Doe
Location: Miami , FL Time Sick: 12 years
CFSAC and Lobby Day Events - May 10-12
Sign up and join events virtually or in person
Please help us get the word out!
January 2011 - CDC Chief announced... We take action
Elizabeth Unger, PhD, MD, has been named to serve as the Chief of the Chronic Viral Diseases Branch, of the CDC. (Article with reaction to the announcement) RMCFA has joined PANDORA and nine other organizations to notify Dr. Unger that we expect significant change under her leadership. We are also taking additional steps to be heard. You can participate by signing this petition to let the CDC directors know that we expect change. (see list on petition) The Time is now!
Sign a Petition to ask Mrs. Kathleen Sebelius (U.S. Secretary of Health & Human Services) to meet with us and encourage the funding of Research and treatment Centers as recommeded by the CFSAC commitee to the CDC.
When you sign this petition you are supporting P.A.N.D.O.R.A. and its collaborative partners in getting a response from the Office of the Secretary of Health for a meeting with the U.S. Secretary of Health & Human Services, Mrs. Kathleen Sebelius to ensure her support for aggressive and substantial funding for the NEI Center(TM) and other similar facilities throughout the U.S. Please sign this petition today and forward to your friends and family. We can no longer ignore the physical, financial and emotional toll that these illnesses take on the fabric of communities across the U.S.
1. Circulate the Washington Post half-page ad and press releases...
Send the ad and press release to your representatives, your local media and post through social based communities... You can also send RMCFA's press release
Join the following Community Calls For Action below:
2.) "Time for Action"
If you run a support and or empowerment group, you can download the ad for your meeting and we encourage your members to take photocopies of the ad to send a message to your congressmen under the "Time for Action". Click on the link below. All it takes is one fax to be sent with a short message from you:
3.) Petition to the U.S. Secretary of Health on Facebook (and on Change.org)
Sign the Petitions addressed to the U.S. Secretary of Health below and Join the NEI Center Cause on Facebook.
Petition on Change.org if your friends and family members are not on Facebook. Make sure when you sign that you create an account with them so the signature can be validated and directed to the congressmen in your area.
Without funding for ME-CFS research and for the other NeuroEndocrineImmune Disorders, which consistently overlap with ME-CFS, treatments and potentially a cure for ME-CFS will remain elusive.
Support the MCWPA today with a generous donation at our cause-project page, so we can continue to create awareness and unity within our overall community at
Please thank the team at MCWPA and P.A.N.D,O.R.A. INC. for their tireless work and the many individuals who donated to make the campaign succesful. Also thank Charlotte von Salis and Bob Miller for the time for action campaign.
Ad campaign supporting organizations: R.E.S.C.I.N.D, The Rocky Mountain CFS and FMS Association, The Vermont CFIDS Association, The Wisconsin ME-CFS Association.
Only eveyone working together will bring change. Please take time to make your voice heard.
Director of communications