DENVER, CO December 6, 2010 - Today in the Washington Post RMCFA delivered an important message that we will fight for patients with CFS/ME and other neuroendocrine illnesses. The 1/2 page ad has brought attention to CFS also known as myalgic encephalomyelitis (ME), a disabling and sometimes fatal NeuroEndocrineImmune disease that afflicts more than one million Americans and an estimated l7 million people worldwide.
The Rocky Mountain CFS/ME & FM Association, (RMCFA) together with the ME/CFS Worldwide Patient Alliance (MCWPA), P.A.N.D.O.R.A. Inc., Vermont CFIDS Association, Inc., R.E.S.C.I.N.D., and the Wisconsin ME/CFS Association, Inc. have issued the first ever grassroots patient driven awareness ad campaign for CFS/ME. It is important that we speak out for a patient community that often can't.
The contentious and devastating three decade history of CFS/ME was materially changed by a major scientific breakthrough which occurred in October 2009 when the Whittemore Peterson Institute (WPI) at the University of Nevada, Reno, working with the National Cancer Institute and Cleveland Clinic, published the results of a landmark study. The seminal study, published in the leading scientific journal, Science, discovered the third human retrovirus, XMRV, in the blood of 67% of CFS/ME patients and in 3.7% of healthy controls. This suggests that up to 10 million US citizens could already be infected. This finding was later confirmed by the FDA, NIH and Harvard Medical School in a study published in the Proceedings of the National Academy of Sciences. Their results linked a family of human gamma retroviruses (to which XMRV belongs) to CFS/ME at a rate of 86.5% and 6.8% in the healthy population, bringing the total of Americans who may be infected up to 20 million people.
"These misunderstood illnesses affect people from all walks of life at any time including children." said Mike Munoz, Director of Communications, RMCFA. "We are asking our federal government and health care agencies to stop three decades of stalling and fund CFS/ME research now. Millions of severely ill ME/CFS patients life's are depending on them"
Today we ask everyone to contact their government officials and let them know that we speak with one voice. We have waited long enough, it is time to help patients with these severe illnesses by funding research.
We are advocating for funding that commensurates with other NeuroEndocrineImmune diseases. Currently, only $5 million for ME/CFS research is in the NIH budget, far less than similar diseases such as multiple sclerosis ($l44 million) and lupus ($121 million).
For more information and to donate, please visit our website at http://www.rmcfa.org.
About RMCFA: Our mission is to further education, advocacy and research for Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME) and Fibromyalgia (FM). Together we will make a difference.
About MCWPA: Our mission is to create an effective, cutting-edge advertising campaign addressing the poor quality of life of individuals with ME/CFS. By issuing a collective and unified statement, our community will no longer be silent and invisible.
You can also refer to PR Newswire Press release - click here