September 2011 e-news

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Rocky Mountain

CFS/ME & FM Association

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IACFS/ME Conference
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Coalition 4 ME/CFS
News and Views

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IACFS/ME Conference

Translating Evidence  

into Practice

 

 The International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) will hold the biennial conference in Ottawa, Ontario, Canada, September 22-25, 2011. Hosted by the National ME/FM Action Network (Canada).  

 

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International Consensus Criteria Published for Myalgic Encephalomyelitis

 

JIM

An independent consensus panel of international experts has published in the Journal for Internal Medicine a proposed new criteria for myalgic encephalomyelitis (ME). RMCFA would like to congratulate the authors and we look forward to a world wide consensus definition. 

 

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Two Big Research  

Funding Announcements

 

Huchins Family Foundation gives $10 MIllion for research 

 

CFI

The Hutchins Family Foundation has promised to provide $10 Million in support of ventures pursuing the cause & cure of 'chronic fatigue syndrome/Myalgic encephalomyelitis (ME/CFS) through a newly-formed Chronic Fatigue Initiative. For more information and details on the research programs, lead researchers, and initiative information visit the initiative website

  

 

NIH awards the Lights $1M for CFS & FM gene biomarker studies

A Light

University of Utah researchers Kathleen Light, PhD, and Alan Light, PhD have received a

$1 million, 3-year research grant from the National Institutes of Health (NIH).The grant will essentially expand their work to establish solid biomarkers for CFS and fibromyalgia  

 

 

      



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____________________
RMCFA Board of Directors 
Paul Haines
Kitty Sherback
Tim Smith
Stacey Townsend
Jane Wallace
Mike Munoz

Officers
President  

Tim Smith

 Executive Director and
Coalition 4 ME/CFS
& Fibromyalgia
Steering Committees

Mike Munoz    

Thank You for supporting RMCFA

 

Advocate for research

Awareness for understanding

Educate for patient care

Support for hope

meeting


Next Event:

 

Sunday, October 9, 2011

Discussion Meeting 

2:15 - 4:30 PM

Meeting Room A at Southglenn Library  

"The Streets at SouthGlenn."

6972 S. Vine Street, Centennial, CO - map

   

For More information

Coalition 4 ME/CFS & RMCFA Announce Historical ICD Proposal Acceptance
and Presentation

  

C4ME/CFS logoThe Coalition 4 ME/CFS on July 15, 2011, submitted a proposal to the National Center for Health Statistics (NCHS) (CDC) for reclassification of chronic fatigue syndrome (CFS) as a neurological disease in the United States International Classification of Diseases-10-CM (ICD-10-CM) and (ICD-9-CM). The proposal was accepted for review and was presented at the meeting of the Coordination and Maintenance Committee, in Baltimore, Maryland, on September 14, 2011. RMCFA is a charter member of the Coalition 4 ME/CFS.  

 

The Coaliton 4 ME/CFS will also present at the IACFS/ME conference on Friday, September 23, 2011. 

 

MikeThe proposal request is supported by recommendations from the CFS Advisory Committee (CFSAC), and in recognition of the current scientific understanding of CFS and its classification in the ICD-10 by the World Health Organization (WHO). "The goal of this proposal is to ensure alignment with ICD-10 under WHO and the clinical modifications embraced by other countries, and to ensure alignment with the best current case definition for CFS, which includes both viral and bacterial triggers," stated Mike Munoz, a member of the Coalition 4 ME/CFS steering committee and Executive Director at RMCFA.

 

Lori
Lori Chapo-Kroger

The WHO publishes the ICD, which is
used by more than 100 countries to standardize how diseases are classified. In the ICD-10, which is the current global standard, myalgic encephalomyelitis (ME), post viral fatigue syndrome (PVFS), and CFS are all classified under Neurological Diseases. "This is a stepwise change that will separate cases of ME/CFS from cases of unspecified chronic fatigue and depression, and, signal  the medical community the seriousness of this disease," said Lori Chapo-Kroger, President of CFS Solutions of West Mighigan
 and steering committee member.

 

It is estimated by the Centers for Disease Control and Prevention (CDC) that at least one million individuals in the U.S. and 17 million worldwide (National Institutes of Health) are stricken with this debilitating, disabling, and sometimes fatal disease.  

 

marly
Marly Silverman

The Coalition supports retiring the name chronic fatigue syndrome (CFS) and a worldwide collaborative  accepted case definition, with well-defined diagnostic criteria and guidelines for implementation of well-devised treatment standards. The coalition recognizes pragmatically it will take time to drive this welcome change across all clinical, research, legal, disability, and insurance disciplines in the U.S., this proposal initiative contributes to a productive timely result.   

 

RMCFA extends a special thanks to Marly Silverman (Founder PANDORA and Mary Dimmock for their dedication to this effort.   

    

 

   

 News and Views

 

International Consensus Criteria Published for Myalgic Encephalomyelitis - An independent consensus panel of international experts has published in the Journal for Internal Medicine a proposed new criteria for myalgic encephalomyelitis (ME). 

 

Chronic Fatigue Initiative -Accelerating the medical community's knowledge of Chronic Fatigue Syndrome through research grants and collaboration.

   

Applying Venture Philanthropy to Chronic Fatigue Syndrome

- By Amy Dockser Marcus  

 

Kathleen Light's Group Secures Million-Dollar NIH Award

- Kim McCleary

 

Chronic Fatigue Syndrome Study Deals a Blow to a Viral Theory - David Tuller - NY Times - Also XMRV in Science: Take Three - Kim McCleary

 

Reduced insular gamma-aminobutyric acid [GABA] in fibromyalgia - Source: Arthritis & Rheumatism, Sep 13, 2011 - ProHealth

 

Sensory Overload Part of Your Fibro? - Fibromyalgia Network

 

NCHS to Consider Reclassifying CFS as Neurological Disease Sep 14 - Coalition 4 ME?CFS - Prohealth

 

Annette Whittemore (WPI) on Nevada newsmakers - video  

 

Cerebral Blood Flow Alterations in Pain-Processing Regions of Patients with Fibromyalgia - Prohealth  

 

 What might cuase ME? - Giles Meehan - video (RMCFA Youtube channel)  

 

Vagus Nerve Stimulation for Fibromyalgia Treatment - By Adrienne Dellwo

 

The Center for Translational Medicine at the Whittemore Peterson Institute ("WPI") is proud to welcome Dr. Robert S. Fredericks as our first medical practitioner. - Prohealth

 

Genetic fibromyalgia subgroup with higher BMI & inflammation identified - UT San Antonio - Prohealth

 

Harvard EEG tests distinguish CFS from major depression patients; temporal lobe implicated - Prohealth

 

 

 

 

 
   

 


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