May 2011 e-news
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Rocky Mountain

CFS/ME & FM Association

May 2011 e-news link
In This Issue
Join RMCFA Facebook!
Volunteers needed
Important Dates
Discussion/Support Event
RMCFA Joins Coalition 4 ME/CFS
CDC Meeting Scheduled
News and Views
Join RMCFA on Facebook and YouTube

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and join us!  
Updated everyday with current news and community events

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We need Volunteers:

 

Someone experienced in Video  

making, editing and producing

 

Communications public relations and/or written communications

 

or 

 

you have experience with organizing and facilitate meetings and would like to help. 

 

Please contact us at info@rmcfa.org

 

  

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Important Dates Upcoming:

 

 

May 10-11 

CFS Advisory Committee   

(CFSAC) Meeting

Agenda 

 

Speak Up About ME

RMCFA sponsored event

  Young people with ME/CFS

 

lobby day posterMay 9-13  

ME/CFS & Fibromyalgia Awareness -

 Lobby Day

/Month  

Washington DC   

 

Whittemore Peterson Institute
May awareness website:  

anida.com

 

   



Please Donate!

Your donations make

our work possible


donate

 
 

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Join Our Email List
Email:  
Contact:

:: www.rmcfa.org

::
link@rmcfa.org

:: 303.423.7367

 
:: 303.4.CFS. FMS


____________________
RMCFA Board of Directors 
Paul Haines
Kitty Sherback
Tim Smith
Stacey Townsend
Jane Wallace
Mike Munoz

Officers
President  

Tim Smith

 Executive Director
Mike Munoz  

 

Thank You for supporting RMCFA

 

Advocate for research

Awareness for understanding

Educate for patient care

Support for hope
 

meeting


Next Event:

 


Saturday May 21, 2011
2:15 - 4:30 PM

Discussion Meeting

Meeting Room A at Southglenn Library  

"The Streets at SouthGlenn."

6972 S. Vine Street, Centennial, CO - map

 

   

For More information



 RMCFA launches YouTube channel and Public Service Announcement

 

For May Awareness Month, the Rocky Mountain CFS/ME & FM Association launches YouTube Channel and public service announcement. The YouTube channel features patient stories, educational, advocacy and PSA videos for ME/CFS and fibromyalgia.

 

PSARMCFA is also announcing in a press release the distribution of a new ME/CFS public service announcement. RMCFA is joining partner organizations across the nation highlighting that ME/CFS is more prevalent than Lung Cancer, Leukemia and AIDS afflicting 1 million Americans and 17 million worldwide. The PSA can be seen on the RMCFA YouTube channel and our website. Thank You to MCWPA and congratulations to Lynn Bousquet for submitting the winning video. 

 

   

   

Courtney Miller asks President Obama about ME/CFS research at Reno town hall

 

Courtney Miller

Obama Town Hall meeting Reno 4/21 - Courtney Miller asking President Obama about CFS funding - See the exchange here - direct link or go to the

RMCFA YouTube Channel - 47th minute of the town hall meeting. 

 

 

 

Take Action

Also NEW! Take Action Campaign from Bob Miller - Go to RMCFA Action Center or RMCFA Facebook  for Letter writing campaign to President Obama - You can make the difference!   

 

  

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Chase

Chase Giving: Please Vote for Whittemore Peterson Institute and CFIDS Association of America

 

 

Important! Please take time to vote for WPI or CAA. This will bring research dollars to the community. Round 1 voting will  end at 11:59 PM ET tomorrow - WED - May 4, 2011. Round 2 voting will last one week that will begin on May 19, 2011 and end at 11:59 PM ET on May 25, 2011.  

 

STEP-BY-STEP Instructions:

  1. From your Facebook page, go to Chase Giving Community: http://www.facebook.com/ChaseCommunityGiving
  2. "Like" the Chase Giving Community by clicking on the "Like" button.
  3.  Then click on the below links and vote!  

To vote for Whittemore Peterson Institute

To vote for CFIDS Association of America  

 

4.  Cast your vote by clicking the "Vote Now!" button. (You have to "allow" Chase Giving to access your account info in order for your vote to count.)

  

It is time for action! We ask you to get involved...
Please visit the Action Center and our Facebook page for continued updates of how you can help. 

 

 News and Views

NIH CFS Conference, XMRV Debate Heats Up - Amy Dockser Marcus - WSJ

The Stigma of Chronic Fatigue Syndrome - Toni Bernhard, J.D. - Psychology Today 

 How Old Viruses May Haunt Us - Amy Dockser Marcus - WSJ    

"The November Factor": Dr. Bell on ME/CFS & the Flu that Isn't Flu - ProHealth.com by Dr. David S Bell, MD

Avoiding the Disability Claim' Brush-Off' - What You Need to Know - ProHealth

Dr. Charles Lapp's Recommendations on Supplements for ME/CFS and Fibromyalgia - ProHealth

To the heroes - Chronic Fatigue Syndrome: A Salute To 10 Kinds of Heroes - EmpowHer.com 

6 Tips for College Students with CFS - Careers and classes.com

Fibromyalgia: Diagnosing Fibromyalgia: Common Misdiagnoses - WebMD

CFS in teens not common but very serious & under-diagnosed by GPs - ProHealth

Facing Surgery
With Fibromyalgia & Chronic Fatigue Syndrome - Adrienne Dellwo - About.com

Assessment of a 44 gene classifier for the evaluation of chronic fatigue syndrome from peripheral blood mononuclear cell gene expression - ProHealth

New Genetics Discoveries in Fibromyalgia - Adrienne Dellwo - About.com

Video - The White House Chronicles - CFS - an orphan epidemicGuests: Amy Marcus, The WSJ; Frances Stead Sellers, The W. Post; Deborah Waroff; and Dr. Leonard Jason

CFS Proves Chronically Mysterious -  My Health News Daily

Video - What is it like having ME/CFS? - GetWellFromME

 

 
   

 


   Rocky Mountain CFS/ME & FM Association   |   303-4-CFS-FMS  ( 303-423-7367 )