For Immediate Release
March 14, 2011
RMCFA Joins Coalition 4 ME/CFS, the First US
NueroEndocrineImmune Disorders Coalition
Denver, CO, - March 14, 2011 - The Rocky Mountain CFS/ME & FM Association (RMCFA) and seven NeuroEndocrineImmune Disease (NEIDs) organizations have formed the first US coalition to serve their patient community and change public policy. The Coalition 4 MECFS is the first national project of a network of organizations addressing the plight of the ME/CFS, fibromyalgia and other NEIDs communities.
The Coalition4ME/CFS mission is to present a unified voice with common goals and objectives that will improve the quality of life for patients and their families. This professional collaboration will strengthen its member organizations, promote resource-sharing, encourage networking and provide leadership training.
"The Coalition4ME/CFS promotes more effective and efficient pursuit of common goals," said Tim Smith, President of the Rocky Mountain CFS/ME & FM Association (RMCFA), "providing a channel through which RMCFA can collaborate with like-minded member organizations."
The Coalition4ME/CFS will engage and mobilize governmental health agencies, the private bio-medical industry, researchers, health care providers and the public toward finding a cure for ME/CFS and related NeuroEndocrineImmune diseases. A multi-organization national strategy will change current practices and bring solutions so that ME/CFS patients can lead productive and healthy lives
The following organizations are charter members: Chronic Fatigue Syndrome/ Fibromyalgia Organization of Georgia, Inc., CFS Knowledge Center, CFS Solutions of West Michigan, PANDORA, Inc. (Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research & Advocacy, Inc.), Phoenix Rising, Rocky Mountain CFS/ME & FM Association (RMCFA) ,Wisconsin ME/CFS Association, Inc,.and Vermont CFIDS Association, Inc.
Recently, ten organizations, including RMCFA signed a joint letter inviting the CDC to an open dialogue through regular meetings. The letter and a petition contained nine action points calling for change in the CDC's research into ME/CFS. Subsequent to that letter, CDC officials agreed to schedule a meeting with these patient organization representatives. This shows the success that results when organizations work together on common goals.
Coalition members, including RMCFA are planning grassroots activities for Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting in May and the ME/CFS & FM International Awareness Day. The coalition's future efforts will augment the current scientific breakthroughs in the field of NEIDs. The coalition will make sure scientific discoveries translate into a change in public health policy that will improve quality of life and create a better future for patients with ME/CFS and other NEIDs.
Please visit the coalition website at Coalition4ME/CFS.org or go to the Coalition4ME/CFS Facebook page.
About NeuroEndocrineImmune Diseases (NEIDs)
NeuroEndocrineImmune Disease includes myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS), fibromyalgia (FM), chronic Lyme disease (CLD), multiple chemical sensitivities (MCS) and Gulf War illnesses (GWI)
About RMCFA: Rocky Mountain CFS/FM Association is a DenverColorado based advocacy, education and support non-profit organization for those affected by chronic fatigue syndrome, (CFS) myalgic encephalomyelitis (ME) and fibromyalgia (FM). For more information, visit http://www.rmcfa.org
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Contact: Mike Munoz