November 2011 e-news

 

eNews archive

 

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Rocky Mountain

CFS/ME & FM Association

November 16, 2011 e-news link
In This Issue
Join RMCFA Facebook, Youtube & Twitter!
Chase Giving
Event - Dr. Vernont
Coalition 4 ME/CFS
News and Views


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Chase Giving Front and Center for Community Organizations


Chase giving november 2011
Video on how to vote

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CFSAC meeting was held  

November 8-9th

 

CFSAC will have the full audio and video of the November 8-9 meeting archived soon on the CFSAC website     

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PANDORATOWN HALL - Our Voices, Our Message, Our Lives- We Need a Hero Campaign  

 

Please join us on Nov 16, 2011- 12:00 PM for PANDORA's first Virtual Town Hall with Mr. Patrick Erin Murphy, a candidate running for the U.S. House of Representatives. Mike Munoz will be a panelist. If you are unable to attend, PANDORA will be archiving.

  

 

 



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RMCFA Board of Directors 
Paul Haines
Kitty Sherback
Tim Smith
Stacey Townsend
Jane Wallace
Mike Munoz

Officers
President  

Tim Smith

 Executive Director and
Coalition 4 ME/CFS
& Fibromyalgia
Steering Committees

Mike Munoz    


Chase
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to make a world of Difference...
 
Vote for RMCFA
in the Chase Giving project


If you voted, please ask firends and family.
If you haven't please don't wait.


We need your help!  

vernon

Next Event:

 

Tuesday, December 6, 2011

Suzanne Vernon PH.D.


Scientific Director
CFIDS Association  of America 
4-6 PM
 
Koelbel Library
5955 South Holly Street, Littleton
   

For More information
 


CFSAC Recommendation Affirms Coalition 4 ME/CFS ICD-10 Proposal to NCHS

  

coalition vertical logo

RMCFA and the Coalition 4 ME/CFS would like to thank the Chronic Fatigue Syndrome Advisory Committee (CFSAC) for making a strong statement in support of the Coalition's proposal to reclassify CFS in the clinical manual used in the U.S.  That proposal was submitted to the National Center for Health Statistics (NCHS) that will be making the decision.  

 

Mike

Mike Munoz, RMCFA Executive Director, testimony to the CFSAC Committee on behalf of RMCFA and the Coalition 4 ME/CFS regarding the IDC-10-CM proposal can be read here

 

Prior to reading the recommendation and before the vote, Dr. Nancy Klimas said to other CFSAC members: "The concept here is that Option 1 was, in the feeling of our subcommittee, the best of the options to be lumpers rather than splitters on the terminology of ME/CFS and post viral syndrome, put that all together, with the idea that we are moving toward name change and the name change is likely to not be multiple names. And to have multiple divisions is going to be rather difficult when we have this ICD-10 thing come upon us for quite some time. If we could put things under a single code, I think we are going to be more successful in our name change effort." The coalition has prepared  a letter to medical professionals
why the coalition option 1 is preferred.  

 

You can see the video of this the CFSAC Committee vote, part of the historic change that will improve the quality of life of all with ME/CFS in the United States and other countries.

 

Please sign this petition to send comments in support of Coalition Option 1 and rejecting NCHS Option 2 before the November 18, 2011 deadline.  

 

If you have further questions, please see the Coalition FAQ page and the coalition proposal.

 

    

Rituximab shows early success in Norwegian study published in PlosONe 

 

Two injections of the cancer drug Rituximab, (a B-cell suppressor) which suppresses the immune system, relieved chronic fatigue symptoms in 10 of 15 patients in a phase II trial. This supports the theory that CFS has an autoimmune component.   

 

Two articles:

Research1st 

ABC News  

 

   

 News and Views

  

 

Sleep Differences Separate Fibromyalgia From Chronic Fatigue Syndrome - about.com - also Prohealth 

 

Savella Brings Relief Long-Term in Fibromyalgia - Medpage today  

 

Dr. Daniel Peterson describes the pilot study that NIDA is going to help fund - RMCFA YouTube channel video

PANDORA wins CITGO fueling for good

 
IACFS/ME conference summary - Dr Charles Lapp

Scientist Who Led XMRV Research Team Let Go - Amy Dockser Marcus

XMRV Theory Is Set Back in Chronic Fatigue Syndrome Study

Study: Exercise may help memory of Fibromyalgia patients

 
 
   

 


   Rocky Mountain CFS/ME & FM Association   |   303-4-CFS-FMS  ( 303-423-7367 )